Mysterious Wakeful Nights

Roxie has been waking up at night and sometimes staying awake for 4 to 6 hours in the early morning. We aren't sure what could be causing this behavior, but have wondered if the CoQ10 or Carnitor supplements she takes could be to blame. Her dad mentioned that CoQ10 lists sleeplessness as a side effect. The odd thing is that when she wakes up, usually around 1 or 2 am, she acts like it is time to get up. She is full of energy and sometimes we think she will bounce off of her bed. She claps her hands, makes all kinds of sounds, and occasionally makes so much noise she wakes up her little sister in the adjoining bedroom. Some nights we'll leave her awake in her bed since we now have a video monitor system. It allows us to see Roxie when she's in her bed at night and gives us some peace of mind that she's OK. Since our bedroom is downstairs we felt nervous about being so far away from her should she need help. This way I don't feel the need to run up to check on her all night long since I can just glance at the monitor to see how she's doing. Last night Roxie was particularly wakeful and her Dad got in bed with her and reported that she never fell back asleep the rest of the night after waking up at 1:45am. And because she displayed similar behavior the morning that she had seizures and fell ill in January we get a little paranoid that something could be brewing when she wakes up this way. But this time in the morning she was just fine and had a great time at OT and then a great day at school. I don't get it, but lack of sleep doesn't seem to phase her much. I'll mention this to her pediatrician next visit, but I imagine that he won't have much to say about it. Let's hope for more sleep tonight!