I feel like I am making excuses and still feel some guilt that we didn't bring Roxie along last week, but it did make the trip more relaxing for sure. And yes, we did have a blast. In addition to the reasons previously mentioned, part of the motivation to leave Roxie at home was likely that daily living with her is tiring and having her away from home and at the beach in particular is even more tiring. As a friend puts it, "A beach trip with kids isn't a vacation, it is a relocation." This is particularly true with Roxie and likely always will be true. As our other kids grow the have obtained some abilities to do some things for themselves and we can only hope this independence will continue to blossom. But with Roxie on vacation, it is like having a giant one or two year old who requires total care.
We missed her very much, but were able to enjoy some time as parents without the additional stress created by Roxie's disease. The trip also made me realize how lucky we are to have a set of grandparents with a beach house, where we typically go to the beach during the summer. Not because of all the money that saves us (although that is nice), but because the house is stocked with many of the special items Roxie requires (including an elevator) and because we have extra hands from grandparents.