[January 18, 2008, email to friends and family]
Hi all -
I wanted to let you know that we received some great news from the doctor yesterday. After 17 days at Presbyterian Hospital, it sounds like today or tomorrow should be our last. Needless to say, the mood in Roxie’s room late yesterday afternoon was light-hearted!
Roxie is doing really well, with nice-sounding lungs and seizure control. That said, it has been one week now since she has been off the ventilator, and she still hasn’t taken food or drink orally. Our best guess is simply because she’s stubborn just like any Sprinkle, but we’ve also been told by the doctors and nurses that this isn’t too unusual.
Typically the hospital likes patients to eat/drink on their own before releasing them, but given Roxie’s heightened sensory issues, they agreed that she may be more likely to eat/drink at home in her comfort zone. So ... yesterday they put a central line into her that allows her to get nutrients/fluids through it until she eats/drinks. Along with a nurse who will stop by the house periodically, we will administer all Roxie’s medicines orally and all her nutrition through this central line, that is, until she begins to regularly eat/drink on her own. We were pretty amazed that this was even an option, and we are confident this will get Roxie where she needs to be faster.
From our entire extended family, thank you for your persistent thoughts and prayers, food and cards. This has been, and continues to be, a spiritual and humbling journey, and we will never forget your support.
Love,
Phelps, Kate, Roxie, & McRae
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